Background

Our son Carson was diagnosed 10 days after birth with the genetic disease cystic fibrosis (CF). Having no family history and only minimal awareness of the disease, we quickly overcame the initial shock and started to educate ourselves. While CF is an extremely serious disease, there have been incredible advances in research, awareness and patient outlook. In addition to seeking out the best care possible for our son, we also focused on how to help find a cure for CF and quickly came across the Cystic Fibrosis Foundation.

The CF Foundation is the primary funding source for research and therapeutic development. Four of the medications Carson is on were made possible with support from the Foundation's clinical trial network. One of those drugs, Orkambi, has had the biggest impact for Carson's weight gain and pulmonary function. He was a patient in the stage 3 clinical trial which led to FDA approval.

We share the same mission as the CF Foundation. It is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.